
The IACC Invites Your Opinion
• Speak Out for Services
• An Inquiry Emerges
• The Industrial Treatment
• A Fine White Powder
• A Critical Absence of Data
• Inspecting the Outstretched Palm
• Billing the Adversary
• Sanctioned
• A Whale of an Expert
• Vaccine Court Chronicles
• Pure Hearts & Empty Heads
Autism & Disability Sites & Blogs
Abnormal Diversity
Action for Autism
Along The Spectrum
Andrea's Buzzing About
The Art of Being Asperger Woman
Ask An Aspie
The ASMan
Asperger Square 8
Asperger's Conversations
Aspie Dad
Aspie Home Education
ASPIES
Aspies For Freedom
Autiemom Speaks Out
Autism All The Time
Autism Blog
The Autism Crisis: Science & Ethics of Autism Advocacy
Autism Diva
Autism Natural Variation
Autism Podcast
Autism Squeaks
Autism Street
Autism Vox
Autism Watch
Autism's Edges
Autismland
AutisMusic
Autistic Adults Picture Project
Autistic Advocacy
Autistic Conjecture of the Day
Autistic Dad
Autistic Health
Autistics.org
Ballastexistenz
Bartholomew Cubbins on Autism
Chewing the Fat
Club 166
Commentary on the State of the World
Desperately Seeking Ethics & Reason
dkmnow
Ed's Autism Page
The Family Voyage
Greener Pastures
Grey Matter/White Matter
Hard Won Wisdom
Hazardous Pastimes
Hollywood Spectrum
Homo Autistic
Hyperlexia
Hypnagogic Malcontent
I Speak of Dreams
Ian Johnson's neurodiversity blog
in regione caecorum rex est luscus
Incorrect Pleasures
Interverbal
iRunman Blog
Jedi Workshop
The Joy of Autism
Killer of Sacred Cows
The Kingdom of Laurentius Rex
Left Brain/Right Brain
Life in the New Republic
The Life That Chose Me
Mainstream Parenting
Memory Leaves
meow meow meow... blah blah blah
Misadventures from a Different Perspective
The Misbehaviour of Behaviourists (Discussion Board)
Mom Not Otherwise Specified
Mom to Mr. Handsome
More Than a Label
Mother of Shrek
My Act of Combating Neurobigotry
My Son Has Autism
My Son's Autism
Neurotypicals Are Weird
No Autistics Allowed
Not Mercury
OASIS
Odd One Out
Oddizms
One Dad's Opinion
Parenting a Complex Special Needs Child
PosAutive
Pre-Rain Man Autism
Processing in Parts
Radio Calico
Ragged Edge
Random Reminiscing Ramblings
The Rettdevil's Rants
Sam I Am
Shh... Mum Is Thinking
Silver Cuckoo
Slurping Life
Snippets: Short Takes on Autistic Topics
So Much For Mercury
Stop. Think. Autism.
Susan Senator
Sweet Perdition
This Mom
This Mom
This Way of Life
A Touch of Alyricism
Translating Autism: Autism Research
29 Marbles
Unstrange Minds
Victoria's Corner
We Go To School To Think
Whirled Peas
Whitterer on Autism
Whose Planet Is It Anyway?
Wikipedia on Neurodiversity
Zoe Notes
Older Advocacy Letters
Anti-Mercury or Anti-Vaccine?
Autism & Human Rights (CAC)
Autism & Personhood (NIMH)
The Autism Epidemic & Real Epidemics (MIND)
Autism, Mercury & Politics (Globe)
Babies & Autism (Newsweek)
Deadly Immunity? (Salon)
Evidence of Venom (David Kirby)
Lenny Schafer's Inquisition
On "My Name Is Autism"
On Generation Rescue's "Rescue Angels"
Parents vs. Research (NYTimes)
What Caused the Autism Epidemic? (NYTimes)
Petitions
Autism Speaks: Don't Speak For Me
Justice & Equal Rights for Adults With Autism
Our Names Are Autism, Too
Petition to Defend the Dignity of Autistic Citizens
Science Sites & Blogs
The Angry Toxicologist
Bad Science
Bartholomew Cubbins on RNA
Black Triangle
Confessions of a Quackbuster
Corpus Callosum
The Daily Transcript
Denialism
EpiWonk
Ethics of Vaccines, Center for Bioethics, U Penn
Existence Is Wonderful
GNIF Brain Blogger
Good Math, Bad Math
Holford Watch
Immunoblogging
Junk Food Science
Neuroethics & Law
Neurologica Blog
NHS Blog Doctor
Pathophilia
Pharyngula
A Photon In the Darkness
Pure Pedantry
Quackwatch
Respectful Insolence ("Orac Knows")
Science Evidence
Science-Based Medicine
Scientifically Minded
Skeptico
Terra Sigillata
Vaccine: The Book
Law & Politics
Citizen Media Law Project
Citizen Vox
Consumer Law & Policy
Drug & Device Law
Heraldblog
Legal Blog Watch
The Legal Satyricon
Majikthise
NY Personal Injury Law Blog
Overlawyered
Pharmalot
Point of Law
Public Eye
Volokh Conspiracy
Family & Friends
Ballistic Groove Cannon
Dave Seidel :: Wavicle
Mysterybear
The following is the text of a letter I sent this morning to Dr. Yehuda Shoenfeld, Editor-in-Chief of the journal, Autoimmunity Reviews.
22 January 2007
Dear Dr. Shoenfeld,
Two months ago, I sent an email to you and to members of the Editorial Board of Autoimmunity Reviews, expressing my concerns about Mark and David Geier’s paper, The biochemical basis and treatment of autism: Interactions between mercury, transsulfuration, and androgens, an uncorrected proof of which had been published on October 27, 2006. Several days later, I sent a paper copy of the letter via U.S. Priority Mail to your address at Center for Autoimmune Diseases, Department of Medicine B, Sheba Medical Center, Tel-Hashomer 52621 Israel.
Shortly before I sent my letter, I noticed that the Geier & Geier paper had been removed without explanation from the index of “in-press” papers on the Autoimmunity Reviews website. Although it is certainly appropriate to withdraw it from publication, the questions it raises persist.
In my letter, I addressed Dr. and Mr. Geier’s inadequate disclosure of conflicts of interest, inappropriate brand promotion, inadequate ethical review, excessive self-reference and reliance on suspect sources, misrepresentation of other researchers’ work, misrepresentation of research-related risks, and inadequate case documentation. I also asked whether Autoimmunity Reviews Co-Editor-in-Chief Dr. M. Eric Gershwin played any part in approving for publication this article — which lacks any assurance that the research described in it conforms to internationally-accepted standards for the protection of human research subjects — since he and Dr. Geier both serve as expert witnesses to plaintiffs in the Omnibus Autism Proceeding.
I have received no indication that my original email to you bounced. However, to date, I have not received any acknowledgement that it was received either by you or any member of your staff. Further, the paper copy of my letter was returned to me yesterday unopened. The “Reason for Non-Delivery” sticker affixed to the face of the envelope indicates that you are “Unknown” at the address to which I had sent it. It is my understanding, however, that you are still on the faculty of Sheba Medical Center; for instance, it is the affiliation indicated on the entry for your ongoing clinical trial on autobodies screening in multiple sclerosis and other autoimmune diseases, and also on the list of presenters for the 18th Israeli Medical Association World Fellowship International Conference to be held in April 2007.
In the event that my original email did not find its way to you, I have appended the text below. I hope that the questions I have raised are of interest to you and your colleagues. I will add to those questions a new one. The Sunday Times of London recently published an official accounting of payments made by the Legal Services Corporation to various experts involved in the now-terminated MMR litigation. Among the names on this list are Dr. Mark Geier and a “Dr. Schoenfeld.” Is “Dr. Schoenfeld” you?
I look forward to your reply.
Sincerely,
Kathleen Seidel
neurodiversity.com | honoring the variety of human wiring
http://www.neurodiversity.com
After sending this letter to Dr. Shoenfeld, I revisited the Autoimmunity Reviews index of in-press articles, and found that the listing for The biochemical basis and treatment of autism: Interactions between mercury, transsulfuration, and androgens had been recently restored — with the title now preceded by the word RETRACTED in capital letters. On the article’s information page, the original abstract was replaced by the statement, “This article has been retracted consistent with Elsevier Policy on Article Withdrawal.” The article itself — still available for purchase from Elsevier — features the word RETRACTED in bold red capitals superimposed diagonally over the text.
The journal’s reasons for retracting the article remain unspecified. However, the Elsevier Policy on Article Withdrawal states that an article can only be retracted under exceptional circumstances, such as “infringements of professional ethical codes, such as multiple submission, bogus claims of authorship, plagiarism, fraudulent use of data or the like.”
Previous: On "Unstrange Minds" & the "Autism Epidemic"
Next: Several Mentions & Many Thanks
“infringements of professional ethical codes, such as multiple submission, bogus claims of authorship, plagiarism, fraudulent use of data or the like.”
You think that’s it? Nah.
Good work Kathleen ;-)
— Joseph Jan 23, 06:22 PM #Your hard work has paid off and many people are benefitting from it. Thank you.
— Bartholomew Cubbins Jan 23, 06:58 PM #Kathleen…
You are, as always, amazing. You show what information science really is about.
Well done!
The end result with that paper is a totally appropriate one: should never have been published.
— David N. Andrews MEd (Distinction) Jan 23, 07:41 PM #Oh, what a shame. Those nice Geier boys are just trying to help autistic children and something always goes wrong.
— Not Mercury Jan 23, 08:18 PM #Do you suppose this goes as a smudge against their otherwise STERLING reputations, and will it become harder for a certain father and son to continue to crank out crankpot papers? I hope so. I hope their names are mud with all the Elsevier journals, at least.
— geieronymous lex Jan 23, 10:23 PM #Finally! This should have happened to them long ago. I hope it has an emasculating effect, so to speak.
— Lisa Jan 23, 10:33 PM #Well done and thank you Kathleen.
— Kev Jan 24, 08:05 AM #Fantastic, Kath! Read it and weep, curebies – especially a certain JBJnr! :)
— Phil Jan 25, 05:03 AM #You’ve done an amazing job on this. There’s no telling how much harm your work has prevented. Sure would be nice if the editor at least had the courtesy to respond …
— qchan63 Jan 25, 03:47 PM #Have you ever talked with any of his patient’s parents? Probably not. I have.
— MarkS Jan 26, 02:22 AM #Good job exposing the Geier charlatans for what they are!
— ID Man Jan 26, 10:24 AM #So. . . what’s your point MarkS? Let’s not do the hit and run thing!
— Tom B. Jan 26, 04:10 PM #MarkS – have you ever talked to the patients getting the Lupron protocol to see what THEIR view is on the subject?
— anonimouse Jan 28, 01:51 AM #“MarkS – have you ever talked to the patients getting the Lupron protocol to see what THEIR view is on the subject?”
Probably not.
— David N. Andrews MEd (Distinction) Jan 28, 01:32 PM #MarkS is an abbreviation for Mark’s son, David.
— Mike Stanton Jan 28, 09:24 PM #Actually, Mike, that’s unlikely, given the IP address.
To answer MarkS’s question (sorry so belatedly) — no, I have not yet had an opportunity to talk directly to any of Dr. and Mr. Geier’s patients’ parents. I look forward to the opportunity to do so. However, I cannot imagine that any testimonial could persuade me to feel that the way Dr. and Mr. Geier have been conducting their research into the use of Lupron is acceptable.
— Kathleen Seidel Jan 29, 09:05 AM #Talking to the parent’s of those abused children a/k/a Geier’s patients, will do no good. Sadly, those parents are so heavily invested with fixing their “defective” children than nothing short of Lizzie Borden’s axe can get through.
That is what makes it so tragic.
— TheProbe Feb 3, 03:37 PM #Fantastic job, Kathleen. It wasn’t a “silent” withdrawal though. The word “RETRACTED” speaks volumes!
— Clay Feb 9, 08:58 PM #It is also interesting that the retracted article in question has actually been cited by another paper:
Spironolactone might be a desirable immunologic and hormonal intervention in autism spectrum disorders • ARTICLE
Medical Hypotheses, Volume 68, Issue 5, 2007, Pages 979-987
James Jeffrey Bradstreet, Scott Smith, Doreen Granpeesheh, Jane M. El-Dahr and Daniel Rossignol
(see article information page).
— Jay Feb 28, 02:22 PM #Getting something published in Medical Hypotheses is an almost sure sign that the idea has no merit.
A quick visit by their “instructions to authors” section will reveal that they:
[1] Don’t believe in peer review.
[2] Don’t question the material presented.
[3] Charge by the word.
Personally, I’d be embarrassed to have something published in that “journal”, as it is widely held to be the last refuge of cranks, quacks and loons.
What a shame.
I wonder if there is any point to getting MR Geier’s Nature (1971) and Virology (1972) papers on growing lambda phage in human fibroblasts retracted. Nobody was able to replicate those findings, either.
Prometheus
— Prometheus Mar 6, 09:12 PM #Prometheus,
I wouldn’t bother. Deconstructing a Mark Geier paper isn’t even good sport anymore. It really is the scientific equivalent of shooting fish in a barrel.
— anonimouse Mar 14, 11:12 AM #I was delighted to find this in the British Medical Journal today:
http://www.bmj.com/cgi/content/full/334/7595/666
I wonder what this will kick loose?
— Catherina Mar 30, 06:05 AM #Catherina, thanks so much for bringing this to my attention. I’ve just published a new blog post in its honor.
— Kathleen Seidel Mar 30, 01:15 PM #Brian Deer has made the full text of the retracted article available on his website.
— Kathleen Seidel Mar 30, 01:23 PM #